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Someone Like Me: Oto-Palatal-Digital Syndrome

By |2018-08-01T11:15:16+00:00July 19th, 2018|

Someone Like Me: Oto-Palatal-Digital Syndrome by Jennifer Arnold I was born with a rare genetic condition called Oto-Palatal-Digital Syndrome; only I never knew there was a name for it until my daughter was born in 2006 and diagnosed by a genetics team. Two of my children have the same condition. My Story [...]

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A Cold Isn’t Just a Cold Around Here

By |2018-05-03T09:16:36+00:00April 10th, 2018|

A Cold Isn’t Just a Cold Around Here by Jennifer Arnold I write this as I am sitting ten feet away from my coughing, feverish child. Cold and flu season is still in full force, despite today being the first day of Spring. Our youngest son has chronic lung disease. In his [...]

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Our Tracheostomy Journey

By |2016-11-16T08:38:02+00:00May 26th, 2016|

Our Tracheostomy Journey by Jennifer Arnold Our trach journey began in January of 2011, when our fourth child, Chance, was born. We knew there would be some complications. My 20-week ultrasound revealed that his lower jaw was extremely small, and it was determined that he most likely had Oto Palatal Digital Syndrome. Within hours [...]

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The Stress of it All

By |2016-11-16T08:38:35+00:00March 23rd, 2016|

The Stress of it All by Jennifer Arnold I have had several stressful jobs in my lifetime. I worked graveyard shift in a psychiatric hospital, provided direct care to adults with developmental disabilities, and worked under bosses in retail and office settings that were prone to excessive micromanaging. The most stressful of all, however, has [...]

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