History and Mission

History and Mission 2016-11-16T08:38:47+00:00

Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand. Articles are on a wide variety of topics ranging from basic information on medical conditions and treatments to advice on how to beat insurance company denials.

Complex Child is FREE! The new edition and all archived editions and articles are completely free, but are only available online.

You may use the form on this page to subscribe to our monthly newsletter, which notifies you by email when a new edition is available. Also, feel free to like our Facebook page and follow our Twitter page.

Join the Complex Child Mailing List

Receive email notification whenever a new edition is available.
Enter your name and email address below:
Name:
Email:
Subscribe  Unsubscribe 

History

Complex Child E-Magazine was founded in 2008 by Susan Agrawal, a parent of a child with complex medical needs. There seemed to be a great need among parents to have a body of information about complex medical issues in language without medical jargon.

We recognize that parents usually know best when it comes to children with complex medical needs or disabilities. At Complex Child, we are trying to assemble the collective knowledge of parents to help each other through this journey. It is our hope that the articles published here will help parents give their children the best possible quality of life and medical care.

About the Editor

Susan Agrawal, the editor of Complex Child, is the parent of Karuna, a child with complex medical needs who passed away 9/19/2014. Karuna was diagnosed with cerebral palsy secondary to hypoxic ischemic encephalopathy, and a progressive disorder that was likely autoimmune causing multisystem organ failure. Karuna was vent-dependent, had a GJ tube, a central line, was 100% TPN (IV nutrition) dependent, was on oxygen, and used a Foley catheter.

Susan holds a humanities PhD and used to serve on the faculty of a top research university in the Chicago area. She is actively involved with Feeding Tube Awareness Foundation as a content specialist and board member. In addition to her work on Complex Child, she also maintains Kids’ Waivers, a website devoted to information on Medicaid waivers for children, and helps run MFTD Waiver Families, an advocacy and support group for families in Illinois who receive home nursing.

She currently cares for her typically developing children Sameer and Neena.