Susan Agrawal, the editor of Complex Child, is the parent of Karuna, a child with complex medical needs who passed away 9/19/2014. Karuna was diagnosed with cerebral palsy secondary to hypoxic ischemic encephalopathy, and a progressive disorder that was likely autoimmune causing multisystem organ failure. Karuna was vent-dependent, had a GJ tube, a central line, was 100% TPN (IV nutrition) dependent, was on oxygen, and used a Foley catheter.
Susan holds a humanities PhD and used to serve on the faculty of a top research university in the Chicago area. She is actively involved with Feeding Tube Awareness Foundation as a content specialist and board member. In addition to her work on Complex Child, she also maintains Kids’ Waivers, a website devoted to information on Medicaid waivers for children, and helps run MFTD Waiver Families, an advocacy and support group for families in Illinois who receive home nursing.
She currently cares for her typically developing children Sameer and Neena.