by Kimberly Sullivan

My whole life I have struggled with being enough. This weekend I spent the whole weekend being not enough. I am not gardening enough, cooking enough, cleaning enough, doing enough.

I am just not enough. This is the message that I have been hearing my whole life.kimberly-adam

This constant state of not being enough is exhausting to my already exhausted, over-worked body.

I am the mother of a 22-year-old son in a wheelchair, on a ventilator. In order for him to participate fully in life, I have to be fully involved and tuned into his every need 24 hours a day, 7 days a week. I don’t ever get to rest. I never get to shut off. I never get to not be in charge.

Nevertheless, people in my life still feel the need to point out where I need to do more. It makes me angry. It makes me feel undervalued. It makes me feel like I am not enough.

The people who seem to be saying I am not enough are the same people who couldn’t maintain the level of activity that I have no choice to keep up with for 24 hours—let alone 365 days a year.

My husband doesn’t usually make me feel this way. In fact, I am sure that he feels the same way. There is always too much to do and not enough time. My son does not make me feel this way. He asks a ton of me, more than I can do much of the time. He realizes he requires a ton of care, and tries to stay distracted so that I don’t have to be getting up every two minutes to take care of this or that need. He frequently thanks me for taking care of him.

The reality of the situation is there is a lot of not enough in my life. Not enough rest, not enough time to relax, not enough help, not enough time in the sun, not enough alone time, not enough time to shower, not enough time to do the things that recharge me, not enough time with my husband, not enough escape from stress, not enough time to eat chocolate cake, not enough time to color, not enough time to paint, not enough time to devote to my chocolate business, not enough time to read the Bible (this is one of my favorite things to do), not enough time to….

The list just goes on and on.

Here is what there is enough of: Love for my son.

Time for late night conversations and video games together. Time to work on his homework together (not enough energy on my part). Time to discover how amazingly smart my son is. Time to spend days together exploring Chicago in his speech class.

Time to walk to 7 Eleven to have impromptu picnics of Slurpees, taco rollers for him, and tacos for me. Time to go to movies, or Denny’s, or wherever else he wants to go for Sunday date nights.

These are the things that are important to me. These are my priorities. Taking care of my son and his needs is the only thing on my to-do list. Anything else that gets done is bonus.

When someone tries to guilt me into doing things they feel are important, they are robbing my son of my time. When they try to get me to do things beside rest, they are robbing me of energy that I need to listen for my son overnight when we don’t have night nursing. (I usually have one to two nights of night nursing, and hubby takes two nights. That leaves me with three to four nights a week of constantly interrupted dozing.)

If I share some of my precious energy with you, you better appreciate it, because that means you are important to me. Because there is just not enough of me to go around.

Author: Kimberly Sullivan • Date: 7/14/2016

About the Author

Kimberly Sullivan is the CEO of the Sullivan Family where she manages her husband, son, nurses, and three dogs. Her hobbies include sleeping and chocolate. She details her experiences as the mother of a son with Spinal Muscular Atrophy on her blog, Please Don’t Pet the Special People at ksully357.blogspot.com.

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