These articles are designed to assist you in providing medical care to your child in the home environment.
Home Nursing, Aides, Care Attendants, Respite, and Other Home Care
- A Change in Perspective: How a Nurse Shaped My Parenting Approach
- Home Nursing Reimbursement Rates: An Enormous Problem for Children with Complex Medical Conditions
- Carers in the Home
- 10 Strategies for Finding Nurses
- A Shared Vision: Partnering with Therapists
- Parent CEO: Parent Leadership in In-Home Care
- Home Nursing Care: Who Should Get It, and How Much? An Analysis of State-by-State Diversity
- Technological Advancements for Making Home Nursing Care a Little Less Painful
- What is Home Health?
- God’s Got This: Embracing Respite
- Don’t be an Unnecessary Burden: Caregiving to Create Independence
- Remotely Monitoring Your Child and Caregiver
- New York State of (Nursing) Mind
- The Importance of Finding the Right Nurse
- Nursing in the Home: A Mother’s Honest Perspective
- How to Increase Your Child’s Medicaid Private Duty Nursing Hours
- Respite Nursing for Rookies
- 40 Questions to Ask a Potential Nurse or Other Caregiver
Medical Care at Home
- Persevere into Problem Solving: Using an Ambu Bag
- Please Wash Your Hands: Life with Kids who are Medically Fragile
- Collaborating and Planning for Respiratory Season
- Beating a Stomach Bug When Your Child is Medically Complex
- Handling a Medical Crisis
- Home Care: Sleep Deprivation, Mistakes, and Pushing Through
- Periods in Children and Young Adults with Severe Disabilities
- Heart Rates in Kids with Complex Medical Conditions
- Preparing for Emergencies with a One-Page Snapshot
- Emergency Tips from an EMT
- Hurricanes, Tornadoes, Fires, and Floods OH MY!
- Tube Sites: The Do Nothing Approach
- Taping a GJ-Tube
- Intrapulmonary Percussive Ventilation (IPV): Another Option for Airway Clearance
- Keeping Warm for Children with Disabilities
- 10 Ways to Beat the Winter Blues When Your Child is Stuck at Home
- 10 Tips for Getting Out of the House With a Ton of Medical Equipment
- When Summer Makes You Sick: Dealing with Severe Heat Intolerance
- 5 Rules of Suction Etiquette
- The In-Betweens: A Parent/Nurse Perspective on Children with Severe Disabilities
- Attaching Medical Equipment to Wheelchairs and Strollers
- Managing Oral and Respiratory Secretions
- Overcoming the Trach Fear
- Book Review: Caring for Children Who Have Severe Neurological Impairment: A Life with Grace by Julie M. Hauer, MD
- Thwarting Murphy: 8 Humorous Ways to Avoid Hospitalizations
- The Top Ten List for Hospital Frequent Flyers
- The Complexities of Coping
- Avoiding Hospitalizations Using Care Plans
- Dealing with Low Body Temperatures
- DNRs and Advance Planning for Kids: Everything You Need to Know
- Urinary Catheter Types
- The Pee Soaked Bed: Options for Super Soakers
- Trach Tips!
- Helpful Hints for Trach/Vent Equipment and Supplies
- Tube Feeding in Public
- Breathing Pacers for Children who Require Ventilator Support
- Trached and Traveled: The Trach To-Go Bag
- Preventing the Flu and Its Complications in Children Who are Medically Complex
- Helpful (and Funny!) Products for Cold and Flu Season
- How to Keep Your Area Clean for Preparing IV Infusions or Tube Feeds
- Life on a Tether: Why Can’t Kids Get Portable Oxygen Concentrators?
- Ventilator Alphabet Soup
- Infection Control for Trachs
- Non-Invasive Ventilation: When a Trach Isn’t the Best Choice
- All About Blood Gases
- Home Feeding Pumps and IV Pumps
- Surviving a Power Outage with Complex Medical Issues
- Puffy, Dry, Why? Fluid Balance Issues Explained
- Quality of Life: Tubes, Lines, and Other Attachments
Making Home Care Work
- Our Medical Foster House is a Happy House
- Toileting Children with Disabilities in Public
- The Nuts and Bolts of Building an Accessible Home
- Home Sweet (Accessible) Home
- Care Mapping for Children with Complex Conditions or Disabilities
- The Fantastic Benefits of Complex Care Programs
- Moving Gracefully through Different Levels of Care
- Tracking the Struggles and the Joys
- 10 Ways to Find Balance
- Watch Your Back!
- Something’s Got to Give: Dealing with Caregiver Burnout When You Are On 24/7
- Handling a Medical Crisis
- Balancing Act
- Four Steps To Manage Supplies and Maintain Your Sanity
- Home Care: Sleep Deprivation, Mistakes, and Pushing Through
- Carers in the Home
- When Hope Begets Tears: The Task of Letting Go Just a Little
- Funding for Specialty Medical Beds
- Connecting to a Circle of Care
- 8 Ways to Help Families in the Hospital
- Palliative Care or Complex Care: Which is Right for Your Child?
- Counting Smiles Not Days: Bringing Palliative Care to Our Local Hospital
- Palliative Care and Respite Houses: A Desperate Need in the United States
- The Complexities of Moving a Child with Special Needs
- Homebound Instruction for Children who are Medically Complex
- When Less Is More: Opting Out of Therapies, School, or Doctor Visits
- The Importance of Finding the Right Nurse
- Nursing in the Home: A Mother’s Honest Perspective
- Conquering the Medical Supply Monster
- Color-Coded Syringes: A System for Sleep-Deprived Parents
- How to Bathe Your Kid with Medical Issues
- How to Make a Floor Mat for a Child Who Loves to Kick and Stretch Out
- Creating an ER Protocol for Your Child
- Diaper and Incontinence Product Coverage Through Medicaid and Insurance
- Car Seats for Children with Special Needs
Benefits and Funding for Home Care
- 10 Strategies for Finding Nurses
- Programs for Children with Special Health Care Needs: Another Funding Option through Title V
- Health Insurance Premium Payment (HIPP) Programs: Assistance Paying for Private Insurance for Kids with Complex Medical Issues
- Funding Sources for Uncovered Supplies and Equipment
- Kids’ Waivers: A Website on Children’s Medicaid Waivers
- EPSDT: 5 Little Letters to Get Everything Your Child Needs
- How to Increase Your Child’s Medicaid Private Duty Nursing Hours
- Guaranteed Medicaid for Children with Complex Medical Needs
- Our Broken System
- How to Take on Your State in 10 Easy Steps
- Fighting the New York State Medicaid Red Tape
- What is Olmstead? Protecting Children from Being Forced into Institutions
Articles from the Archives
These articles from the archives have not been transferred from the old website yet. They will open in a new window.
- Living with a Nurse in the Home: Suggestions, Stories, and Solutions
- How to Evaluate and Choose Therapies
- Keeping Your Child Out of the Hospital: Treating Serious Illnesses at Home
- Why Are So Many Home Health Companies Incompetent? How Negligent Practices Impact Our Children
- Working Together for Change: Addressing Nursing Reimbursement
- Federal and State Assistance Programs for Children with Special Needs
- Medicaid Waivers Must Be Transferable from State to State
- Obtaining In-Home Services
- Patient Centered Care in Home Health Care Companies
- The Importance of Respite
- Organizing and Preparing to Leave Your Child With a Caregiver
- Breathing Easy: A Trach at Home
- Being a Kid: Thriving with a Trach and Vent
- An Introduction to Pediatric Palliative Care
- Funding Sources for Home Modification
- Universal Design: Accessibility for All
- Bedroom, Bathroom, and Ramp Project
- Deck and Lift Project
- Deck and Ramp Project
- Bedroom, Bathroom, Nurse’s Area and Multisensory Area Project
- Should Children with Severe Neurological Issues Be on Monitors During Sleep?
- Getting Paid to Care for Your Child
- Nursing and Respite Care Benefits
- Solutions for Temperature Regulation Problems
- Interpreting Your Child’s Lab Results
- Normal Vital Signs in Children: Heart Rate, Respirations, Temperature, and Blood Pressure
- Recognizing and Treating Fevers in Children with Complex Medical Issues
- Vibration for Pain Control and Calming
- Finding Primary Pediatric Care for Your Child with Complex Medical Needs or a Disability
- Helping Our Kids Communicate Their Health Care Needs
- Organizing Your Child’s Lab Results
- Avoiding Erroneous Munchausen Syndrome By Proxy Allegations
- When Your Child Won’t Sleep
- Flu Shots for Kids with Medical Conditions or Vaccine Reactions
- Sleep Problems in Children with Special Needs
