This section of the website includes articles about the various emotions experienced by parents and caregivers.
Acceptance
- From Resistance to Acceptance and Back Again
- The Beauty Behind the Diagnosis
- A Change in Perspective: How a Nurse Shaped My Parenting Approach
- The War in Holland
- A Walk I Would Take Again…
- Being Okay with No Answers
- From Rare to Extraordinarily Rare in an Everyday Kind of Life
- Blur: Inside My Life as the Parent of a Child with a Rare Disease
- Our Big Messy Life
- Moving Forward
- Wanting Answers but Living with Uncertainty
- The Seat You Find Yourself In: Being New to Special Needs Parenting
- Don’t Blame Children for Their Medical Conditions: A Christian Perspective
- To the Doctor Who Told Me Not to Get Attached to My Baby
- Embracing Play on Their Terms
- Shopping for Wheels: From Trepidation to Acceptance
- Wheelchair Poetry: Reactions to Children in Wheelchairs
- A Letter to my Daughter on Finding Your Voice
- A School for Blue Roses
- When Less Is More: Opting Out of Therapies, School, or Doctor Visits
- You’re Not Poking a Hole in My Kid! From Refusal to Begrudging Acceptance of a G Tube
- Giving Them Wings: A Boy and His Powerchair
- True Love
- The Gift of Speech
- The Word Normal
- New Normals
- Whap! Right Upside the Head! The Road to Acceptance
- Loving and Hating Your Child’s Condition
- You Will Be OK
- Climbing: Love, Fear and Letting Go
- Learning to Enjoy the Inchstones
- What You Least Expected: Rewriting the Parenting Book
Emotions
- Climbing the Emotional Caregiving Mountain
- The Emotional Trauma of a Medical Emergency
- From Resistance to Acceptance and Back Again
- The 6 Human Emotions of Parenting a Child with a Disability
- Unseen and Unheard: The Complex Emotions of Parenting a Child who is Medically Complex
- Do Not Say I’m Sorry!
- A Disability System Designed for Defeat
- The Mind and Emotions of Caregivers: The Challenges of Mental Health
- The Caregiving Journey: From Isolation to Building Bridges
- Mental Illness in Caregivers
- The Grief of Caregivers: A Religious Perspective
- The Strain of Caregiving
- Don’t Pity Us Because My Child Has a Disability
- Parenting a Child with a Life Threatening Illness: The Best Mindfulness Practice of them All?
- Self-Actualization and Mothering a Boy with a Disability
- Feeling Feelings
- Anticipatory Grief
- Life on a Roller Coaster
- Everyone’s Disability: Fear
- To Know Joy
- Crippling Doubt
- A Child’s Grief: Explaining Death to Children with Special Needs
- Coping Emotionally with a Special Needs Diagnosis
- From Sadness to Gratitude: The Spirituality of Special Needs
- 8 Unexpected Emotions at a Child’s End-of-Life
- Ticket Please: The Caregiving Rollercoaster
- Picking Up the Pieces of Peace
- Ordinary Joy
- Happiness
- Hope
- Determination
- Envy
- Fear
- Helplessness
- Caregiving Stress: The Beautiful Mess
- Every Day, We Choose Joy
- Feelings About My Brother
- Jealousy
- Hope for My Child
- Happiness: The Most Remarkable Present of All
- Optimism
- Mamma in the Pressure Cooker: Being a Mom, Caregiver, and Expected Miracle Worker
Articles from the Archives
These articles from the archives have not yet been transferred from our old website. They will open in the a new window.