This section of the website includes articles about GI conditions and problems, tube feeding, nutrition, and IV nutrition (TPN).
Feeding Tubes and Enteral Feeding
- Top 10 Reasons Feeding Tubes Are Amazing
- The Long Term Benefits of Feeding Tubes
- The Beautiful Response of Siblings to a Feeding Tube
- To the Parent Whose Child Just Got a Feeding Tube
- Helping Programs Accommodate a Feeding Tube
- Deciding on a G-Tube for an Older Child
- Learning about GJ Tubes
- When Your Child Cannot Have “Real” Food
- Life with Aspiration and a Feeding Tube
- Products for Kids with New G-Tubes
- Handling a Medical Crisis
- GJ-Tube Button Tubes
- Feeding Tubes for Kidney and GI Issues
- The Decision to Stop Feeding Therapy Was the Best Therapy
- Lessons from a Feeding Tube
- Tube Sites: The Do Nothing Approach
- Taping a GJ-Tube
- Gastro Interruptus
- Feeding Clinics and Tube Weaning: The Approach Matters
- The Smell of Thanksgiving
- When A Feeding Tube is Forever
- Making the GJ Decision: When Gastric Feeds Aren’t Tolerated
- Swimming and Splashing with Complex Medical Conditions
- 10 Reasons the New Enteral Connectors Actually Rock
- How Do Parents Feel About Feeding Tubes?
- The Feeding Tube Decision: Gaining or Losing?
- Food as Medicine: A Holistic Approach to Blenderized Tube Feeding
- Tube Removal: Cautions and Complications
- Book Review: Tasting Life: A Story of Courage, Strength, Humor and Love in the Face of a Chronic Illness by Inalee Koonin
- Tube Feeding in School
- A Resource Guide for Enteral Formula Coverage
- Celebrating Feeding Tube Awareness Week: For the Love of a Tubie
- You’re Not Poking a Hole in My Kid! From Refusal to Begrudging Acceptance of a G Tube
- Taking the Work Out of a Blenderized Diet
- From Pancakes with Syrup to TPN: Our Daughter’s Battle with Dysmotility
- Child-Led Tube Weaning: Ditching Spencer’s Tube
- Funny Alternative Uses for Medical Supplies
- Just One Bite! Overcoming Oral Aversions
- Why Awareness of Tube Feeding Matters
- G Tube: Didn’t Want It, But Now I Love It
- Positive Tube Identity
- Tube Feeding in Public
- Taking the Fear Out of Feeding Tubes, One Tubie Friend at a Time
- The Family that Plays Together…Eats Together! Incorporating Siblings into Tube Feeding
- Former Puke Machine: Our Journey in Blended Dieting
- Overcoming the Small Percentiles: Our Super Tubie
- How to Keep Your Area Clean for Preparing IV Infusions or Tube Feeds
- TMI on Tube Feeding Poo
- Dissolving Meds for Feeding Tube Administration
- It Starts with Awareness
- Home Feeding Pumps and IV Pumps
- Quality of Life: Tubes, Lines, and Other Attachments
Parenteral Nutrition (TPN) and IV Nutrition
- Swimming and Splashing with Complex Medical Conditions
- Book Review: Tasting Life: A Story of Courage, Strength, Humor and Love in the Face of a Chronic Illness by Inalee Koonin
- From Pancakes with Syrup to TPN: Our Daughter’s Battle with Dysmotility
- Overcoming the Small Percentiles: Our Super Tubie
- How to Keep Your Area Clean for Preparing IV Infusions or Tube Feeds
- Home Feeding Pumps and IV Pumps
- Quality of Life: Tubes, Lines, and Other Attachments
Nutrition and Diet
- When Your Child Cannot Have “Real” Food
- GI Charting Made Our Lives Way Simpler!
- Food as Medicine: A Holistic Approach to Blenderized Tube Feeding
- Taking the Work Out of a Blenderized Diet
- Just One Bite! Overcoming Oral Aversions
- Former Puke Machine: Our Journey in Blended Dieting
Reflux and Vomiting
- More Than Just Reflux: Other Gastrointestinal Problems Causing Vomiting and Feeding Intolerance
- Solutions for Retching
- Solutions for Vomiting
- Former Puke Machine: Our Journey in Blended Dieting
Stooling, Constipation, Diarrhea, and Ostomies
- The Daily Poop…Life with a Colostomy
- GI Charting Made Our Lives Way Simpler!
- Dyssynergic Defecation and Biofeedback Therapy
- A Perfect Poop: Imperforate Anus
- TMI on Tube Feeding Poo
- Mt. Vesuvius Eruptions
- Poop, Poop, and More Poop
- Bowel Movements as Health Indicators
- Ileostomy Tips
- Solving Encopresis
Other GI Conditions
- More Than Just Reflux: Other Gastrointestinal Problems Causing Vomiting and Feeding Intolerance
- Solutions for Retching
- Severe Nausea Caused by Seizures
- Functional Abdominal Pain and Visceral Hyperalgesia
- Neuro-Crying, Neuro-Irritability, or Pain?
- Beating a Stomach Bug When Your Child is Medically Complex
- Rueben’s Story: Rare Multiple Autoimmune Diseases
- GI and Behavioral Symptoms from Food Intolerances
- Celiac Disease in Individuals Who are Medically Complex
- Surviving Late-Onset Necrotizing Enterocolitis
- FPIES: The Formation of a Foundation
Articles from the Archives
These articles from the archives have not yet been transferred from our old website. They will open in a new window.
- Tests to Diagnose Reflux and Motility Problems
- Impedance Probe Monitoring to Diagnose Reflux
- Medications for Reflux and Other Upper GI Problems
- Fundoplication in Children with Neurological Impairments
- 10 Questions Every Parent Needs to Ask before Fundoplication Surgery
- Gut Motility Problems in Children
- What on Earth is the Autonomic Nervous System? Dysautonomia and Autonomic Dysfunction
- No Way Out: Living with Gastroparesis
- Olivia’s Story: Living with Pseudo-Obstruction
- Biliary Diversion: Another Option for Children with Severe Dysmotility
- Life with an Ostomy: A Mother’s Perspective
- Teeth: The Poor Man’s Motility Study
- The Poop Chronicles
- Imperforate Anus–What!?
- Olivia’s Story: Living with Pseudo-Obstruction Life with an Ostomy: A Mother’s Perspective
- The Tube-feeding Emergency Kit
- Lauren’s Story: Tube Feeding at College
- Our Tube-Weaning Roller Coaster
- Breastfeeding Your Tubefeeder
- A Journey to Proper Nutrition: Learning to Thrive through Food Trials and Tube Feeds
- Blended Diets: Why Not Real Food?
- Extension Sets and Adaptors for Feeding Tubes
- All About NG Tubes
- All About G Tubes
- All About NJ, GJ, and J Tubes
- What Truly Makes a Child Special…And Not Extra Special (tube removal)
- Site Care Tips for Feeding Tube Stomas
- Feeding Tube Awareness Week
- Eating Like a Toddler — With a Feeding Tube: Tube Feeding Whole Foods
- Medical Food Coverage and Legislation
- Update on Fundoplications and Feeding Tubes
- Growing to Accept and Love the G-Tube
- A Journey through an Intensive Feeding Tube Wean
- Options for Jejunal Tubes
- My Irrational Fear of Feeding Pumps Explained
- The Story of Fred
- Feeding Tube Product Roundup
- Book Review: My Tubey by Rhiannon Merritt-Rubadue
- Feeding Tube or Not? Making A Hard Decision
- Online Educational Tools for Children Requiring Nutrition Support
- Strategies for Preventing or Reducing Parenteral Nutrition-Associated Liver Disease
- Keeping Your Central or PICC Line Safe: Using Chlorhexidine Products to Prevent Infection
- Learning about Parenteral Nutrition and Central Lines: The Oley Foundation’s Online Training Modules
- New Innovations to Keep Central Line Caps Clean
- Long-Term Parenteral Nutrition as a Palliative Care Treatment
- The Lady with the Lamp: Using Ultraviolet Light to Sterilize Line Sites
- Current Information on Omegaven
- Online Educational Tools for Children Requiring Nutrition Support
- Fluid Requirements for Children
- Formulas Part I: Commonly Used Formulas
- Formulas Part II: Specialized Formulas
- Letting Your Dairy-Free Child Thrive
- Eating Like a Toddler — With a Feeding Tube: Tube Feeding Whole Foods
- Living with Eosinophilic Esophagitis
- Life Without Food: Living with an Eosinophilic Disorder
- Glimpses of Italy: When Your “Typical” Child Faces Medical Issues story of two children with Eosinophilic Esophagitis
- Mito Plus: One Family’s Experience with Mito, Autism, and Eosinophilic Disease
- Cyclic Vomiting Syndrome: The Disease in Disguise
- Cystic Fibrosis? When Doctors Disagree on the Diagnosis
- The Importance of Introducing Tastes
- When the Mouth Won’t Work
- Raising Children Who Don’t Eat in a Food-Centered World