Home Sweet (Accessible) Home

by Bridget Rolek

As parents of children with disabilities and medical complexities, our daily lives are complicated by the reality that the homes we live in do not meet our needs. For us that often means lifting our children in and out of bathtubs and maneuvering around crowded spaces filled with supplies and equipment. For our children it unfortunately means they can’t participate in or do some things even in their own homes, or worse yet, they settle for compromised safety.

These problems only intensify as our children grow or their needs become more complex. Sometimes the best solution is to build a home with some unique features that work for your child and your family. We reached that point three years ago and built our dream home. When I say “dream home” I don’t mean a sprawling house with Italian marble countertops, floor to ceiling windows, an in-ground pool, and spa-like bathrooms. That would have been my dream once, but as most parents of kids with special needs know, dreams change. By dream home I mean a home where our son could be involved in everything we did, where he would be safe even in emergencies and where caring for him was easier and safer for us.

accessible doorway

We wanted to be able to come and go from every door in our home without having to think about accessibility and to be able to get into and out of our wheelchair van inside our garage, a necessity during Wisconsin winters. Our front entrance has a low maintenance, non-slip concrete walk that leads right up to the 36” wide door.

accessible rear doorway

Wheelchair access to our backyard was important to us. Our back door, also 36” wide, leads from a basement family room to a large concrete patio.

side windows

The windows to our son’s bedroom are large and low. In the event of a fire, firefighters could use these windows to get our son out.

accessible entry

We wanted clear, spacious wheelchair pathways throughout the entire home. That meant no sharp turns coming in or out of doorways, an open floor plan, and lots of space.

Our front entrance and our garage entry are side-by-side off the main living area. No turns are required when coming and going from the house. A coat closet sits between the entry doors, and a pantry is off to the right.

wide hallway

The hallways in our home are 4 feet wide to make it easy for a wheelchair user to move around. We asked that our son’s room also have an extra-large door. At 3.5 feet wide, it is so big that even the ambulance stretcher fits down the hall and into the bedroom.

The main floor hall leads to the basement stairs and master bedroom on the left, our son’s room on the right directly opposite the master, and a bathroom at the end of the hall. Positioning his bedroom door directly across from ours ensures we can hear and quickly reach him in the middle of the night.

Pocket doors are used for the bathroom and our son’s bedroom, so doors aren’t in the way. It also solves the problem of the doors being scraped by wheelchair footplates.

accessible bedroom

We installed a ceiling track lift in our son’s bedroom to transfer him to and from his bed and wheelchair.

outlet

Every outlet in the room has four plugs for medical equipment.

walk in closet with medical equipment

A large walk-in closet in our son’s room allows us to easily store most of our needed medical supplies and equipment right in his room. We also installed several outlets inside the closet to charge equipment batteries. When his wheelchair is not being used, it also fits inside the closet and out of the way.

roll-in shower

The main bathroom has a 6 by 3.5 foot roll-in shower with nonslip tile and a handheld shower sprayer. We chose not to add grab bars to keep the bathroom from looking too institutional. Since our son can’t use his hands, they were not necessary. They can, however, be added later if needed. The wall behind the tile is properly braced for them.

bathroom sink

The toilet itself is ADA compliant, but once again we left it without grab bars. We also chose not to install an ADA compliant sink because it would take up a lot of space and not be used by our son. Instead we used a small pedestal sink with a tilted mirror above it. The tilt feature allows our son to see himself in it while we get him washed up and comb his hair. We also installed a bathroom fan with a built-in heater to keep him warm during showers.

accessible living room

The main living area also has several wheelchair friendly features, including hard surface floors, no area rugs, lever style door handles and windows low enough for someone in the wheelchair to see out of. The furniture is arranged to create space for a wheelchair. We particularly like the footstool pictured here. We have a pair in our living room and another in our family room. They are big and sturdy enough to pull up right next to our son’s wheelchair and sit on, so they are perfect for playing video games or reading a book together.

accessible kitchen

The kitchen is large enough for our son to be with us while we cook or do dishes. Again, we chose not to add expensive accessible features such as ADA-compliant appliances because our son cannot use them.

accessible dining room

Like everywhere else in the house, clear pathways are provided to move a wheelchair throughout the living area, including one to a screened porch with an accessible doorway.

accessible proch

On the porch, the furniture is once again arranged so there is enough space for a wheelchair to turn around comfortably.

wheelchair stair lift

The idea was to provide access to every room in the house. With that in mind we installed an inclined platform wheelchair stair lift. It was very important for our son to get into the basement, not only for safety reasons during storms, but also to enjoy the family room and patio. The family room is carpeted with a short-looped pile that is easy to push a chair over. We had it glued completely down to make sure it does not stretch and bunch up under wheelchair wheels, which is a common problem with carpets that are installed with tack strips.

whole house surge protector

Less pretty to look at, but very important, are some safety features we installed. This whole house surge protector prevents lightning damage to our son’s expensive medical equipment.

two built in generator panels
outdoor generator access

In a power outage we have two generator hookups that provide heat and air conditioning as well as power to outlets in our son’s room and to the refrigerator.

The entire building project, from the time we purchased the land until the day we moved in took about ten months. As anyone who has built a home will tell you, it was very time consuming and sometimes stressful. In the end, the keys to a successful construction project are the same whether accessibility is an issue or not. You need to have a thorough understanding of your needs, wants and priorities, a great builder, a lot of patience and a sense of humor. All our efforts paid off. We now have a home that meets our needs and that we love living in. And that’s a dream come true.

Author: Bridget Rolek • Date: 8/23/2019

About the Author

Bridget Rolek is a former librarian and stay-at-home mom, primary caregiver, and advocate for her son Sam, who has Schizencephaly, severe cerebral palsy and Lennox-Gastaut Syndrome. She believes that information and organization, along with a sense of humor and a full pot of coffee, are the keys to thriving as a special needs parent.

Bridget is currently writing an e-book about home organization strategies for special needs parents to be published in late 2019 or early 2020. She also serves on a joint committee to improve care coordination and outcomes for children enrolled in the complex care programs at the University of Wisconsin’s American Family Children’s Hospital and Children’s Hospital of Wisconsin.

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