This section of the website includes articles about organizing medical supplies, medical records, and equipment. It also includes articles about preparing for hospital stays, trips, and caregivers.
General Preparation
- Tracking the Struggles and the Joys
- Guardianship of a Sibling
- 5 Strategies for Managing Children Who are Medically Complex
- Medical Binders: Organization Means Better Advocacy
- GI Charting Made Our Lives Way Simpler!
- Finding My Voice by Using It
- ABLE Accounts: Saving While Preserving Your Child’s Access to Medicaid and Other Social Services
- 10 Tips for Becoming Your Child’s Most Powerful Advocate
- Organizing for Advocacy in Special Education
- 8 Information Strategies for Parents and Caregivers of Children who are Medically Complex
- How to Appeal an Insurance Denial: 9 Steps to Success
- 14 Tips for Getting the Best Medical Care During Hospital Stays
- Parent CEO: Parent Leadership in In-Home Care
- Technological Advancements for Making Home Nursing Care a Little Less Painful
- 5 Tax Tips for Parents of Children with Complex Medical Issues
- Preparing Financially for a Child’s End-of-Life
- Connecting to a Circle of Care
- The Informed Caregiver
- 8 Ways to Help Families in the Hospital
- Programs for Children with Special Health Care Needs: Another Funding Option through Title V
- The Complexities of Moving a Child with Special Needs
- Bleeding Water from a Stone: Budgeting, Being Frugal, and Saving on a Limited Income
- Special Needs Trusts and Financial Planning
- Funding Sources for Uncovered Supplies and Equipment
- The Most Annoying Part of Special Needs Parenting
- Kids’ Waivers: A Website on Children’s Medicaid Waivers
- EPSDT: 5 Little Letters to Get Everything Your Child Needs
- A Resource Guide for Enteral Formula Coverage
- The Top Ten List for Hospital Frequent Flyers
- Avoiding Hospitalizations Using Care Plans
- DNRs and Advance Planning for Kids: Everything You Need to Know
Emergency Preparation
- Emergency Brain
- Preparing for Emergencies with a One-Page Snapshot
- Emergency Tips from an EMT
- Hurricanes, Tornadoes, Fires, and Floods OH MY!
- Emergency Preparedness During Travel
- Creating an ER Protocol for Your Child
- Surviving a Power Outage with Complex Medical Issues
Organization
- Tracking the Struggles and the Joys
- Four Steps To Manage Supplies and Maintain Your Sanity
- Just GO!
- 5 Strategies for Managing Children Who are Medically Complex
- Medical Binders: Organization Means Better Advocacy
- GI Charting Made Our Lives Way Simpler!
- 10 Tips for Getting Out of the House With a Ton of Medical Equipment
- New Year’s Resolutions: Let’s Get Organized!
- Conquering the Medical Supply Monster
- Trached and Traveled: The Trach To-Go Bag
- How to Keep Your Area Clean for Preparing IV Infusions or Tube Feeds
- Color-Coded Syringes: A System for Sleep-Deprived Parents
Articles from the Archives
These articles from the archives have not yet been transferred from the old website. They will open in a new window.
- Creating a Care Notebook for Your Child
- Tips for Coping with Extended Hospital Stays
- Preparing for a Doctor Visit
- Creating a Medical Summary for Your Child
- Strategies for Organizing Medications
- Organizing Supplies: A Pictorial Essay
- Keys to Organization: Maintaining Communication, Time and Sanity
- When No One Is Listening: Advocating Successfully with Your Child’s Medical Team
- Choosing Clothing for Children with Special Needs
- Organizing and Preparing to Leave Your Child With a Caregiver
- Wearable Medical Alert Options
- Organizing Your Child’s Lab Results
- The Hidden Financial Costs of Having a Child with Special Needs, Part 1: The Problem
- The Hidden Financial Costs of Having a Child with Special Needs, Part 2: The Solutions
- Keeping Track of Medications Using MyMedSchedule.com
- Surviving a Sleep Study
- Website Review: Nathan’s Chart, a Meal Planner for Tube Feeding