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2012 Editionsadmin2019-03-11T10:07:53-05:00

January: Advocacy and Awareness

  • You Are Your Kid’s Voice:  A Parent’s Guide to Advocating
  • It Starts with Awareness
  • Getting the Most from Your Insurance
  • Raising Awareness: The Example of Breath of Hope
  • Advocating for Your Child While Inpatient
  • Diaper and Incontinence Product Coverage Through Medicaid and Insurance
  • New Year’s Resolutions: Let’s Get Organized!

February: Adaptive Equipment

  • Up with Down Syndrome
  • All About Standers
  • How to Bathe Your Kid with Medical Issues
  • How to Make a Floor Mat for a Child Who Loves to Kick and Stretch Out
  • Reviews: Tumble Forms Feeder Seat and Full Support Outdoor Swing
  • Creating an ER Protocol for Your Child
  • To Sign or Not to Sign: What to Look for in Medical Release Forms

March: Vision

  • Mom Knows Best: A Journey to Cystic Fibrosis
  • My Son Thomas is Blind: Our Journey of Understanding, Acceptance and Advocacy
  • Living with Retinitis Pigmentosa
  • Vision Therapy for Children Who are Blind
  • Cortical Vision Impairment and Education
  • Nystagmus: Eyes in Motion
  • 40 Questions to Ask a Potential Nurse or Other Caregiver

April: Respiratory Issues

  • Life on a Tether: Why Can’t Kids Get Portable Oxygen Concentrators?
  • Ventilator Alphabet Soup
  • Infection Control for Trachs
  • Non-Invasive Ventilation: When a Trach Isn’t the Best Choice
  • All About Blood Gases
  • Color-Coded Syringes: A System for Sleep-Deprived Parents

May: Children's Voices

  • From One Kid to Another
  • Children’s Voices
  • Global Tracheostomy Tube Awareness Week
  • Dissolving Meds for Feeding Tube Administration

June: Play!

  • Empowering Your Child
  • Inexpensive Options for Sensory Play
  • Growing Up with Rachel: Play from a Sister’s Point of View
  • Adapting Toys for Play
  • Ballet is for Everyone
  • Treating Recurrent Infections: Are We Too Heavy-Handed with the Antibiotics?
  • What is Olmstead? Protecting Children from Being Forced into Institutions

July: Travel

  • When Your Child Can’t Travel
  • The Getting Started Guide to Your Next Family Vacation
  • Preparing to Travel with a Child Who is Medically Complex
  • A Family’s Adventures and Ideas for Travel with a Kid Who is Complex
  • Learning to Cope
  • Williams Syndrome: Creating a Family of Hope

August: An Entire Edition on Poop

  • TMI on Tube Feeding Poo
  • Mt. Vesuvius Eruptions
  • Poop, Poop, and More Poop
  • Bowel Movements as Health Indicators
  • Ileostomy Tips
  • Solving Encopresis

September: IEPs, 504s, and ABCs

  • Let My Kid Go to School!
  • Solving Your Special Education Nightmare: How to Get Free Advocacy and Legal Help
  • Exercising Your Option to School Your Child with Special Needs at Home
  • What’s So Special About Special Education Meetings?
  • When Schools Fail: Accidental Homeschooling
  • Transition: Planning for the Future
  • Living Life with Congenital Central Hypoventilation Syndrome
  • How to Keep Your Area Clean for Preparing IV Infusions or Tube Feeds

October: Feelings

  • You Will Be OK
  • Climbing: Love, Fear and Letting Go
  • Feelings About My Brother
  • Jealousy
  • Hope for My Child
  • Happiness: The Most Remarkable Present of All
  • Mamma in the Pressure Cooker: Being a Mom, Caregiver, and Expected Miracle Worker
  • Optimism
  • The Problem with Medicaid Block Grants for Children with Complex Medical Needs

November: Cold and Flu Season

  • Turning Down the DNR
  • Preventing the Flu and Its Complications in Children Who are Medically Complex
  • RSV: A Devastating Respiratory Virus
  • Natural Medicine for Infection Prevention and Treatment
  • Rolling with the Special Needs Certified First Responders
  • Helpful (and Funny!) Products for Cold and Flu Season

December: Insurance and Medicaid

  • Stop Me in My Tracks
  • Guaranteed Medicaid for Children with Complex Medical Needs
  • Our Broken System
  • How to Take on Your State in 10 Easy Steps
  • Fighting the New York State Medicaid Red Tape
  • Trached and Traveled: The Trach To-Go Bag
  • Our Journey with Proteus Syndrome: The Condition of “Elephant Man”

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The information on these pages is not a substitute for appropriate medical care. Please contact your child's physicians before making any changes in your child's care. Complex Child is for research purposes only and does not constitute medical advice.
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