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2014 Editionsadmin2019-03-11T10:02:40-05:00

January: Coping

  • The Pain Scale of Life: Helping Each Other Cope
  • My Real Child
  • Why I am a Proud Preemie Mom: Finding the Good in Everything
  • Every Day, We Choose Joy
  • Losing Faith:  Coping Without God
  • Coping Through Faith
  • Snow Globe Pee: Sediment in the Urine

February: Feeding Tubes and GI Problems

  • Celebrating Feeding Tube Awareness Week: For the Love of a Tubie
  • You’re Not Poking a Hole in My Kid! From Refusal to Begrudging Acceptance of a G Tube
  • Solutions for Vomiting
  • Taking the Work Out of a Blenderized Diet
  • From Pancakes with Syrup to TPN: Our Daughter’s Battle with Dysmotility
  • Child-Led Tube Weaning: Ditching Spencer’s Tube
  • Rare Disease Day
  • A Rare Disease – What’s in a Name?

March: Hospitalizations

  • Thwarting Murphy: 8 Humorous Ways to Avoid Hospitalizations
  • The Top Ten List for Hospital Frequent Flyers
  • The Complexities of Coping
  • Avoiding Hospitalizations Using Care Plans
  • The Hospital Routine
  • Dealing with Low Body Temperatures

April: Insurance and Medicaid Benefits

  • The Most Annoying Part of Special Needs Parenting
  • Kids’ Waivers: A Website on Children’s Medicaid Waivers
  • EPSDT: 5 Little Letters to Get Everything Your Child Needs
  • A Resource Guide for Enteral Formula Coverage
  • Book Review: Caring for Children Who Have Severe Neurological Impairment: A Life with Grace by Julie M. Hauer, MD

May: Respiratory Issues

  • To BiPAP or Not to BiPAP — That is the Question
  • Samantha’s Trach Story
  • Managing Oral and Respiratory Secretions
  • Overcoming the Trach Fear
  • Aerophagia: From Eating Air to Eating Food
  • Trach Basics: Pediatric Trach Types
  • 50 Feet of Freedom and Fun: Having an Active Child on Continuous Oxygen and other Respiratory Support
  • The Pediatric Medical Marijuana Movement

June: Special Education

  • A School for Blue Roses
  • Tube Feeding in School
  • Homebound Instruction for Children who are Medically Complex
  • GEMSS: Genetic Education Materials for School Success
  • Your School Experience CAN be Positive!
  • When Less Is More: Opting Out of Therapies, School, or Doctor Visits

July: Caregiver Emotions

  • Ticket Please: The Caregiving Rollercoaster
  • Picking Up the Pieces of Peace
  • Ordinary Joy
  • Happiness
  • Hope
  • Determination
  • Envy
  • Fear
  • Helplessness
  • Caregiving Stress: The Beautiful Mess
  • Behavior Modifying Medications: A Parent’s Dilemma

August: Financial Issues

  • Top 8 Super Powers of Special Needs Parents
  • Bleeding Water from a Stone: Budgeting, Being Frugal, and Saving on a Limited Income
  • Special Needs Trusts and Financial Planning
  • Funding Sources for Uncovered Supplies and Equipment
  • A Day in Special Needs Clinic

September: Communication

  • Five Rules to Live By With a Disability
  • A Letter to my Daughter on Finding Your Voice
  • Making Choices: Beginning the Augmentative Communication Process
  • The “Ah-ha” Communication Moment
  • How Do You Know Your Child Understands?
  • The Path to Communication
  • Communication with Hearing Loss
  • Family Retreats for Stressed Families

October: Urology and Nephrology

  • More than a Mom
  • The Pee Saga: Our Life with Vesicoureteral Reflux
  • Operation Transformation: Kidney Transplant in a Child Who is Medically Complex
  • The Effects of Chronic Kidney Disease on Children Who are Medically Complex
  • Our Journey with Kidney Stones
  • Health Insurance Premium Payment (HIPP) Programs: Assistance Paying for Private Insurance for Kids with Complex Medical Issues

November: Complex and Palliative Care

  • The Long Road Ahead
  • Palliative Care or Complex Care: Which is Right for Your Child?
  • Counting Smiles Not Days: Bringing Palliative Care to Our Local Hospital
  • Palliative Care and Respite Houses: A Desperate Need in the United States
  • The Complexities of Moving a Child with Special Needs
  • Rainbow Connection: Questions about Adult Programs for Young Adults with Special Needs

December: Wheelchairs and Strollers

  • 8 Ways to Help Families in the Hospital
  • Obtaining a Wheelchair or Medical Stroller
  • Attaching Medical Equipment to Wheelchairs and Strollers
  • Shopping for Wheels: From Trepidation to Acceptance
  • Our Life with Wheels: The Freedom of Mobility
  • Wheelchair Poetry: Reactions to Children in Wheelchairs
  • Programs for Children with Special Health Care Needs: Another Funding Option through Title V

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The information on these pages is not a substitute for appropriate medical care. Please contact your child's physicians before making any changes in your child's care. Complex Child is for research purposes only and does not constitute medical advice.
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