- Celebrating Feeding Tube Awareness Week: For the Love of a Tubie
- You’re Not Poking a Hole in My Kid! From Refusal to Begrudging Acceptance of a G Tube
- Solutions for Vomiting
- Taking the Work Out of a Blenderized Diet
- From Pancakes with Syrup to TPN: Our Daughter’s Battle with Dysmotility
- Child-Led Tube Weaning: Ditching Spencer’s Tube
- Rare Disease Day
- A Rare Disease – What’s in a Name?
- The Most Annoying Part of Special Needs Parenting
- Kids’ Waivers: A Website on Children’s Medicaid Waivers
- EPSDT: 5 Little Letters to Get Everything Your Child Needs
- A Resource Guide for Enteral Formula Coverage
- Book Review: Caring for Children Who Have Severe Neurological Impairment: A Life with Grace by Julie M. Hauer, MD
- To BiPAP or Not to BiPAP — That is the Question
- Samantha’s Trach Story
- Managing Oral and Respiratory Secretions
- Overcoming the Trach Fear
- Aerophagia: From Eating Air to Eating Food
- Trach Basics: Pediatric Trach Types
- 50 Feet of Freedom and Fun: Having an Active Child on Continuous Oxygen and other Respiratory Support
- The Pediatric Medical Marijuana Movement
- Five Rules to Live By With a Disability
- A Letter to my Daughter on Finding Your Voice
- Making Choices: Beginning the Augmentative Communication Process
- The “Ah-ha” Communication Moment
- How Do You Know Your Child Understands?
- The Path to Communication
- Communication with Hearing Loss
- Family Retreats for Stressed Families
- More than a Mom
- The Pee Saga: Our Life with Vesicoureteral Reflux
- Operation Transformation: Kidney Transplant in a Child Who is Medically Complex
- The Effects of Chronic Kidney Disease on Children Who are Medically Complex
- Our Journey with Kidney Stones
- Health Insurance Premium Payment (HIPP) Programs: Assistance Paying for Private Insurance for Kids with Complex Medical Issues
- The Long Road Ahead
- Palliative Care or Complex Care: Which is Right for Your Child?
- Counting Smiles Not Days: Bringing Palliative Care to Our Local Hospital
- Palliative Care and Respite Houses: A Desperate Need in the United States
- The Complexities of Moving a Child with Special Needs
- Rainbow Connection: Questions about Adult Programs for Young Adults with Special Needs
- 8 Ways to Help Families in the Hospital
- Obtaining a Wheelchair or Medical Stroller
- Attaching Medical Equipment to Wheelchairs and Strollers
- Shopping for Wheels: From Trepidation to Acceptance
- Our Life with Wheels: The Freedom of Mobility
- Wheelchair Poetry: Reactions to Children in Wheelchairs
- Programs for Children with Special Health Care Needs: Another Funding Option through Title V
