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2015 Editionsadmin2019-03-11T09:59:37-05:00

January: Books We Love

  • God’s Got This: Embracing Respite
  • Book Review: Let’s Talk About It: Extraordinary Friends by Fred Rogers
  • Book Review: The Able Life Of Cody Jane: Still Celebrating by Marly Cornell
  • Book Review: Views From Our Shoes: Growing Up with a Brother or Sister with Special Needs by Donald Meyer
  • Book Review: Tasting Life: A Story of Courage, Strength, Humor and Love in the Face of a Chronic Illness by Inalee Koonin
  • Book Review: Different Dream Parenting by Jolene Philo
  • The In-Betweens: A Parent/Nurse Perspective on Children with Severe Disabilities

February: Annual Feeding Tube and GI Issue

  • 10 Reasons the New Enteral Connectors Actually Rock
  • How Do Parents Feel About Feeding Tubes?
  • The Feeding Tube Decision: Gaining or Losing?
  • Food as Medicine: A Holistic Approach to Blenderized Tube Feeding
  • Surviving Late-Onset Necrotizing Enterocolitis
  • Tube Removal: Cautions and Complications

March: Adventures in Caregiving

  • 5 Things Every Special Needs Parent Should STOP Doing
  • The Informed Caregiver
  • 5 Gifts of Parenting Children with Special Needs
  • Connecting to a Circle of Care
  • More Difficult or Less Difficult? The Path of Choosing to be a Parent
  • Dealing with “It Won’t Happen To Me” Syndrome
  • Don’t be an Unnecessary Burden: Caregiving to Create Independence
  • Book Review: A Mother’s Story with Great Honesty: Life with Grace

April: Preparing for End-of-Life

  • Preserving Memories of Unconditional Love
  • Quality of Life — and Death
  • Preparing Financially for a Child’s End-of-Life
  • 8 Unexpected Emotions at a Child’s End-of-Life
  • The Palliative Care Approach
  • 5 Tax Tips for Parents of Children with Complex Medical Issues

May: Annual Respiratory Edition

  • Finding my Superpower: On Becoming a Trach Mom
  • Global Tracheostomy Tube Awareness Week
  • 5 Rules of Suction Etiquette
  • Treatment Options in Cystic Fibrosis
  • Recent Improvements in Medical Equipment for Children with Respiratory Conditions
  • Keeping Your Child’s Memory Alive

June: Experiencing Rare Conditions

  • Nicholas’ Experience with West Syndrome: Infantile Spasms from a CDKL5 Disorder
  • A Life with Few Answers: Questioning in Rare Diseases
  • When Your Child Isn’t Just Rare But Probably One of a Kind
  • Dying from Nothing: When You Never Get Answers
  • From Birth to Death, With a Smile

July: Summer Fun!

  • Life as Therapy: Finding the Balance between Summer Play and Therapy
  • Summer Activities For Kids with Motor Challenges Using a PowerLink
  • An Accessible Garden
  • Swimming and Splashing with Complex Medical Conditions
  • Combining Fun with a Medical Trip
  • When Summer Makes You Sick: Dealing with Severe Heat Intolerance

August: Back to School

  • What a Report Card Doesn’t Say…
  • A Letter to My Son’s Teachers
  • Transportation to School for Kids with Complex Medical Conditions
  • Thinking Outside the Box: Education for Children with Chronic Conditions
  • “Show Me the Rule!” An Effective Way to Overcome Special Education Problems
  • You’re Doing What To My Son’s Brain? Dystonia and Contemplating Deep Brain Stimulation

September: Bones, Muscles, and Joints

  • What I Need…But Don’t Really Want You to Know
  • Cerebral Palsy 101
  • Riding the Waves of a Genetic Muscle Condition
  • Living With Ehlers Danlos Syndrome
  • How to Keep Your Kid Out of Medicaid Managed Care

October: Home Care Edition

  • It Can Happen to You
  • What is Home Health?
  • Parent CEO: Parent Leadership in In-Home Care
  • Home Nursing Care: Who Should Get It, and How Much? An Analysis of State-by-State Diversity
  • Technological Advancements for Making Home Nursing Care a Little Less Painful

November: Vision and Hearing

  • The Unexpected: Where are the Rest of the Chapters in the Book?
  • Insurance and Medicaid Coverage for Children’s Hearing and Vision Assistance Devices
  • Seeing the Benefits of Vision Therapy
  • No, My Kid Isn’t Sleepy! Ptosis Diagnosis and Correction
  • Children with Multiple Disabilities: What Does a Deaf-Blind Diagnosis Look Like?
  • Keeping Warm for Children with Disabilities

December: Spirituality

  • Everything DOESN’T Happen For a Reason
  • “I’ll Pray for You”: Faith, Religion, Spirituality
  • The “Man” in the Sky?
  • From Sadness to Gratitude: The Spirituality of Special Needs
  • How to Appeal an Insurance Denial: 9 Steps to Success

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The information on these pages is not a substitute for appropriate medical care. Please contact your child's physicians before making any changes in your child's care. Complex Child is for research purposes only and does not constitute medical advice.
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