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  • Caregiving
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  • Medical Info
    • COVID-19 Information
    • General Medical Care
    • Gastrointestinal
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    • Infections and Immunity
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2019 Editionsadmin2019-12-02T07:22:35-06:00

January: Pain and Debilitating Symptoms

  • Seeing Her Value
  • Severe Nausea Caused by Seizures
  • Functional Abdominal Pain and Visceral Hyperalgesia
  • Neuro-Crying, Neuro-Irritability, or Pain?
  • The Crisis in Pain Control for Children who are Complex, Non-Verbal, or Cognitively Impaired
smiling toddler

February: Annual Feeding Tube and GI Edition

  • The Beautiful Response of Siblings to a Feeding Tube
  • To the Parent Whose Child Just Got a Feeding Tube
  • Helping Programs Accommodate a Feeding Tube
  • Deciding on a G-Tube for an Older Child
  • The Daily Poop…Life with a Colostomy
  • Learning about GJ Tubes
  • When Your Child Cannot Have “Real” Food

March: Neuro Conditions

  • Beyond the R Word
  • Planting Seeds of Hope in Your Garden: Growing the Brain
  • A Surprise Meeting with Juvenile Myoclonic Epilepsy
  • Addison’s Decline from a UBTF Gene Mutation
  • Kids with Complex Needs Can Stretch Their Wings at Summer Camp!

April: Challenges of Caregiving

  • Fighting for Answers
  • The Mind and Emotions of Caregivers: The Challenges of Mental Health
  • The Caregiving Journey: From Isolation to Building Bridges
  • Balancing Work and Raising Kids with Special Needs: Not for the Faint of Heart
  • Mental Illness in Caregivers
  • When Your Marriage Does Not Survive
  • The Grief of Caregivers: A Religious Perspective
  • The Strain of Caregiving
  • Books for Kids with Disabilities: 2019 Schneider Family Book Award Winners
young child getting vest treatment

May: Annual Respiratory Edition

  • Mother’s Day for Parents of Children with Disabilities
  • The War in Holland
  • “T” is for Transitions, Toughness, Terrific: Living Life to a Capital “T” with a Trach
  • Persevere into Problem Solving: Using an Ambu Bag
  • Tracking the Struggles and the Joys
baby with trach in hospital

June: Preemies and the NICU

  • The Beauty Behind the Diagnosis
  • Sharpening the Focus on Long-Term Preemie Outcomes
  • Navigating the NICU Journey While Caring for Siblings at Home
  • The NICU: A Parent and NICU Nurse’s Perspective
  • A Change in Perspective: How a Nurse Shaped My Parenting Approach
young child swimming in a float

July: Special Education

  • My Declaration as a Medical Special Needs Parent
  • Preparing for Your Child’s First Day of School
  • Top 10 Advocacy Tips for Special Education
  • Winning at Special Education: A Perspective from Both Sides of the Table
  • Extremely Rare: When Rare Becomes Reality with Nonketotic Hyperglycinemia
August photo contest winner

August: Complex and Palliative Care

  • Finding Your Child’s Gifts
  • Care Mapping for Children with Complex Conditions or Disabilities
  • The Fantastic Benefits of Complex Care Programs
  • Moving Gracefully through Different Levels of Care
  • Nursing and Medical Procedures at School: Your Child’s Rights
Child of the month

September: Accessibility

  • Together We Can Make the World More Accessible for All
  • Toileting Children with Disabilities in Public
  • The Nuts and Bolts of Building an Accessible Home
  • Home Sweet (Accessible) Home
  • Creating a Brighter Future for Children like Cedar with PFIC
5 siblings

October: Siblings

  • The Love of a Special Sibling
  • Helping Siblings Thrive with a Brother or Sister who has Complex Medical Needs
  • Dear Jackson, Let’s Not Talk About Your Brother’s Autism
  • The Resilience of Siblings
  • The Illusion of Inclusion: No (Typical) Child Left Behind
  • Our Medical Foster House is a Happy House
family in hospital

November: Coping Strategies

  • The Allegory of the Broken Vessel Garden
  • Please Let Me Sleep! Chronic Sleep Deprivation in Parents of Kids Who are Medically Complex
  • Coping with Unwanted Advice about Your Child’s Medical Condition
  • Coping with a Rare Trisomy: Prayer Can Change the Situation
  • Solutions for Retching
charlie turning 9

December: Orthopedic Issues

  • Fear Metamorphosis
  • Why You Need to Get Your Child Standing!
  • Second First Steps: A Club Foot Journey
  • Non-Surgical Treatments for Spasticity in Cerebral Palsy and Similar Conditions
  • 10 Tips to Surviving the Holidays When Your Child is Medically Complex or Has a Disability

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The information on these pages is not a substitute for appropriate medical care. Please contact your child's physicians before making any changes in your child's care. Complex Child is for research purposes only and does not constitute medical advice.
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